Newsletters

Issue 6 - Autumn 2017

A Message from the Editor

Welcome to the sixth edition of Leaker Life. In this edition, please expect to find lots of useful and important information about CSF leaks, and also some interesting articles regarding EDS and CSF…

The Importance of Patience and Gentle Persistence

Medical News

by Lisa Jamieson, Research Fellow, The Wingate Institute of Neurogastroenterology, Barts & The London School of Medicine and Dentistry, Queen Mary University of London.

Intracranial Hypotension Symposium 2017

Medical News
Awareness Events

The first Intracranial Hypotension Symposium was held on October 14, 2017. Hosted by Cedars-Sinai Medical Center in partnership with Spinal CSF Leak Foundation.

Meet the trustees - Clare Joy

Association News

We would like to extend a very warm welcome to our newest Trustee, Clare Joy. Clare has lived with a hypermobility syndrome and POTS for many years before becoming a spontaneous leaker in October…

Leaker Profile - Suzanne Morgan

Read about Suzanne's story of her CSF leak journey. You can also read about other patient stories on our patient experience's…

CSF leaks hit the News

Leaks in the News

CSF Leaks hit the media in October 2017...and gained quite a bit of attention! Did you hear our Chairman, David Baldwin's interview on the Kaye Adams Show, Radio Scotland, on Tuesday October 3rd? If…

Tractor Rally 2017

Fundraising Events

On 23rd September, veteran rally organiser, Neil MacDonald of Strathpeffer, rallied local tractor enthusiasts to join him for this event, in aid of the CSF Leak Association. 24 tractors took part in…

Q&A with Dr Wouter Schievink

Medical News

This edition of Leaker Life brings the third and final Q and A summary, with Dr Wouter Schievink, a neurosurgeon from Cedars Sinai in Los Angeles.

Article Featured in Fragile Links Magazine

Medical News
Leaks in the News

We had an article featured in the May edition of Fragile Links (EDS Support UK's Quarterly magazine) discussing the links between EDS and CSF leaks. This is repeated below.


Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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