Newsletters

Issue 5 - Summer 2017

A Message from our Trustee Claire Hubbard

Welcome to the 5th edition of Leaker Life. In this edition we are excited to feature the outcomes of our first AGM. Reflecting on our first year and how much has been achieved in such a short space…

Meet the trustees - Deborah

Association News

We’d like to give a very warm welcome to Deborah, our newest Trustee.

Leaker Profile - Donia Wheelan

Donia shares her story about life with a CSF Leak. You can read more about other patient stories on our patient's experiences pages. Donia's Vlogs are fantastic - a really creative and engaging way…

Kilt Ride 2017

Fundraising Events

Following the huge success of The Kilt Ride 2016, the event took place again from 26th - 29th May this year, and once again it was not only a sight to behold, but a fantastic opportunity for the…

Intracranial Hypotension Symposium Announcement

Medical News

The Intracranial Hypotension Symposium to be held on October 14, 2017 will be hosted by Cedars-Sinai in partnership with Spinal CSF Leak Foundation.

Q&A with Dr Ian Carroll - Anaesthetist

Medical News

In the fourth edition of Leaker Life we featured the first of three live Q & A sessions with the worlds leading CSF leak specialists. In this edition, we summarise the session with Dr Carroll.

CSF Leak Association AGM 2017

We held our inaugural AGM on the 2 May 2017. It was a good opportunity to look back over the past 14 months and see how much we have achieved. Despite all, bar one, of our Trustees having a CSF Leak themselves, we’ve done a lot.

Interview with a fundraiser - Rachael Ebeling

Fundraising Events

I am a wife, mother of two and a full time primary school teacher. I was living a normal healthy life until my world came crashing down. After a nasty chesty cough I began to feel worse than I had…

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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