News

All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News


The Importance of Patience and Gentle Persistence

Medical News

by Lisa Jamieson, Research Fellow, The Wingate Institute of Neurogastroenterology, Barts & The London School of Medicine and Dentistry, Queen Mary University of London.

Intracranial Hypotension Symposium 2017

Medical News
Awareness Events

The first Intracranial Hypotension Symposium was held on October 14, 2017. Hosted by Cedars-Sinai Medical Center in partnership with Spinal CSF Leak Foundation.

Cerian reports on the first Intracranial Hypotension Symposium

Medical News
Awareness Events

The first Intracranial Hypotension Symposium was held on October 14, 2017. Hosted by Cedars-Sinai Medical Center in partnership with Spinal CSF Leak Foundation.

Cerian Baldwin, a Trustee of the CSF Leak Association, was able to attend the symposium. Here she shares her experience of the day.

Meet the trustees - Clare Joy

Association News

We would like to extend a very warm welcome to our newest Trustee, Clare Joy. Clare has lived with a hypermobility syndrome and POTS for many years before becoming a spontaneous leaker in October…

Leaker Profile - Suzanne Morgan

Read about Suzanne's story of her CSF leak journey. You can also read about other patient stories on our patient experience's…

CSF leaks hit the News

Leaks in the News

CSF Leaks hit the media in October 2017...and gained quite a bit of attention! Did you hear our Chairman, David Baldwin's interview on the Kaye Adams Show, Radio Scotland, on Tuesday October 3rd? If…

Tractor Rally 2017

Fundraising Events

On 23rd September, veteran rally organiser, Neil MacDonald of Strathpeffer, rallied local tractor enthusiasts to join him for this event, in aid of the CSF Leak Association. 24 tractors took part in…

Prime Four Beast Race

Fundraising Events

We wish to extend a huge thank you to Jonathan Skinner and friends, who have been extremely busy over recent weeks fundraising for the Association. Jonathan and colleagues collected donations at…

A Message from our Trustee Claire Hubbard

Welcome to the 5th edition of Leaker Life. In this edition we are excited to feature the outcomes of our first AGM. Reflecting on our first year and how much has been achieved in such a short space…

Meet the trustees - Deborah

Association News

We’d like to give a very warm welcome to Deborah, our newest Trustee.


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