News

All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News


A Message from the Trustees

Welcome to the Spring 2018 edition of Leaker Life. In this edition we welcome our new Trustee, Tamsin Trevarthen, who we are really excited to be working with.We take a look back over Leak Week 2018…

CSF Leak Week UK 2018

Medical News
Awareness Events

Our first UK based awareness week ran from the 26th February – 4th March 2018, and what a week it was!

Meet the Medical Advisory Committee Members - Dr James Walken

Medical News
Association News

Dr James Walkden We are delighted to take this opportunity to begin to introduce the members of the Medical Advisory Committee individually, with Dr James Walkden, Neurosurgeon at the Aberdeen Royal…

Rare Disease Day 2018, Scottish Parliamentary Reception

Medical News
Awareness Events

By Deborah Ogg I was very excited to attend the Scottish Parliamentary Reception for Rare Disease Day. The reception was organised by Rare Disease UK / Genetic Alliance UK and the Scottish…

Leaker Profile - Robert Edwards

Robert shares his CSF leak story with us. You can read more patient stories on our patient experiences…

Scottish Kelpies lit up for Leak Week 2018

Awareness Events

Our special thanks go to Scottish Canals for supporting this year’s Leak Week UK by lighting up the wonderful Kelpies for CSF Leak Awareness. Thank also to everyone one braved the plummeting…

Inaugural CSF Leak Association Medical Advisory Committee Meeting

Medical News
Association News

The first CSF Leak Association Medical Advisory Committee Meeting was held on the 20th January at the National Hospital for Neurology and Neurosurgery in London.

A Message from the Chairman

Hello and welcome to this special Christmas edition of our Leaker Life newsletter. As we approach the festive season and New Year beckons, it's customary to look back on the year that was and…

Formation of the Medical Advisory Committee

Medical News
Association News

The 20th January 2018 will mark the inaugural meeting of our Medical Advisory Committee (MAC), where a number of medical professionals with an invested interest in CSF Leaks will come together at a…

A Message from the Editor

Welcome to the sixth edition of Leaker Life. In this edition, please expect to find lots of useful and important information about CSF leaks, and also some interesting articles regarding EDS and CSF…


Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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