News

It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you…

The Second Annual Cedars-Sinai Intracranial Hypotension Symposium will be hosted once again by Cedars-Sinai in partnership with Spinal CSF Leak Foundation on October 13, 2018.

For the second year running, we also wish to express our gratitude to Neil MacDonald for heading up the Tractor Rally 2018 in Ross-Shire. The fun packed event took place on the 22nd September and…

Denise shares her story of her CSF leak journey. You can read other patient experience stories on our patient experiences…

Sandie Moore, Physiotherapist and CSF Leaker, has kindly shared some of her life hacks with us for this edition of Leaker Life.

This year’s CSF Leak Association Annual General Meeting (AGM) was held on 1 August 2018.

We bid you a warm welcome to the summer edition of Leaker Life. This newsletter focuses very much on the leaker community, with the spotlight cast on clinician, trustee and leaker alike. We also turn…

John shares his CSF Leak story with us. You can read about other patient stories on our patient experiences…

Scotland’s largest motorcycle fundraiser to support the CSF Leak Association took place between 26th-28th May and included a full day tour of the Isle of Skye. Starting at the historic ground of…

We're delighted to introduce our newest Trustee, Tamsin Trevarthen, who joined the Board earlier this month. Tamsin developed a spontaneous spinal CSF Leak in January 2011, six months after landing…