News

All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News


RAREfest

Medical News
Awareness Events

It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you…

Second Annual Cedars-Sinai Intracranial Hypotension Symposium

Medical News

The Second Annual Cedars-Sinai Intracranial Hypotension Symposium will be hosted once again by Cedars-Sinai in partnership with Spinal CSF Leak Foundation on October 13, 2018.

Tractor Rally 2018

Fundraising Events

For the second year running, we also wish to express our gratitude to Neil MacDonald for heading up the Tractor Rally 2018 in Ross-Shire. The fun packed event took place on the 22nd September and…

Leaker Profile - Denise Moore

Denise shares her story of her CSF leak journey. You can read other patient experience stories on our patient experiences…

A CSF Leaker's Survival Guide

Sandie Moore, Physiotherapist and CSF Leaker, has kindly shared some of her life hacks with us for this edition of Leaker Life.

2018 CSF Leak Association AGM

Association News

This year’s CSF Leak Association Annual General Meeting (AGM) was held on 1 August 2018.

A Message from the Trustees

We bid you a warm welcome to the summer edition of Leaker Life. This newsletter focuses very much on the leaker community, with the spotlight cast on clinician, trustee and leaker alike. We also turn…

Leaker Profile - John Brennan

John shares his CSF Leak story with us. You can read about other patient stories on our patient experiences…

Kilt Ride 2018

Fundraising Events
Awareness Events

Scotland’s largest motorcycle fundraiser to support the CSF Leak Association took place between 26th-28th May and included a full day tour of the Isle of Skye. Starting at the historic ground of…

Meet the trustees - Tamsin Trevarthen

Association News

We're delighted to introduce our newest Trustee, Tamsin Trevarthen, who joined the Board earlier this month. Tamsin developed a spontaneous spinal CSF Leak in January 2011, six months after landing…


Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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