All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News

When to suspect a CSF Leak

Medical News
Leaks in the News

The Australian Doctor Magazine in March 2019

Trustee Story - Dr Susan Iacovou

Association News

We are delighted to welcome Dr Susan Iacovou to the Board of Trustees. Here is her story.

BASH 8th Biennial National Meeting on Headache

Medical News

17 - 18 January 2019 - By Clare Sargeant It was early in the morning on a cold day back in January that Clare Joy and I set off for Hull to attend the 8th Biennial BASH National Meeting on Headache.…

A Message from the Editor

Welcome to the Winter edition of Leaker Life.Once again it has been a busy time for the CSF Leak Association, and you will see from our Business Plan that we intend to continue forging ahead in…

Leaker Profile - Pete Marnick

Our Trustee tells his story of living with a CSF leak. You can read other stories on our patient experiences…

Christmas Cards 2018

Fundraising Events

This year we have teamed up with so that you can send customised e-cards and donate the equivalent costs of buying and sending the cards to charity. In addition, you can post your…

Meet the Medical Advisory Committee Members - Dr. Anthony Ordman

Medical News

In this edition we get to know Medical Advisory Committee member, Dr. Anthony Ordman a little better, and in particular, what drew him to join the MAC. I was delighted to be asked to become a member…

A Message from the Editor

Now that we are well and truly enveloped in ‘the season of mists and mellow fruitfulness’, we are pleased to welcome you to issue 10 of Leaker Life. Another packed edition, with updates on the AGM,…

First Ever Headache Academy

Medical News
Awareness Events

The CSF Leak Association was delighted to be invited to endorse and attend the first Headache Academy, a teaching weekend on headache disorders which was held on the 13th-14th October 2018 at the Royal College of Physicians in London.


Medical News
Awareness Events

It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you…

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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