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Spotlight on a Volunteer - Claire SeckerPosted on 01 April 2020
Claire Secker is preparing to run the 2020 London Marathon (now rescheduled to 4th October due to the coronavirus pandemic) to raise funds for our charity. To date, she has already been sponsored to the tune of £1,500.
COVID-19 Information for CSF Leak SufferersPosted on 20 March 2020
This page will be kept under review and amended if/when government or expert guidance is updated.
Last updated: 24 March 2020.
Rare Disease Day 2020Posted on 04 February 2020
We had the pleasure of attending the Westminster Reception to celebrate Rare Disease Day. The annual receptions are hosted at the House of Commons in London, the Senedd in Cardiff, and the Scottish…
Intracranial Hypotension Symposium 2020Posted on 16 January 2020
Linda D'Antona attended this year's Intracranial Hypotension Symposium at Cedars Sinai Hospital, Los Angeles.
2020 London MarathonPosted on 27 November 2019
When Claire's husband, Russell, recovered from successful surgery for a severe CSF Leak, they knew they wanted to help other sufferers.
A Message from the TrusteesPosted on 17 October 2019
Welcome to the Autumn edition of Leaker Life.The Association has been incredibly busy over recent months, with farewells to longstanding members of the Board of Trustees, and warm welcomes to new…
A Message from the Outgoing ChairmanPosted on 17 October 2019
The CSF Leak Association is now into its fourth year as a registered charity and almost six years have passed since I and a small group of CSF leak suffers from across the globe came together to…
A further message from Dr. Susan IacovouPosted on 17 October 2019
At our Annual General Meeting in August the CSF Leak Association Chair, David Baldwin, stepped down and I became Acting Chair. I accepted the role with a huge amount of trepidation, knowing that…
Headache Academy 2019Posted on 15 October 2019
The CSF Leak Association was delighted to be invited back to endorse and attend the 2019 Headache Academy at the Royal College of Physicians in London. It was the second specialist teaching weekend on headache disorders organised by Dr Matharu. The foremost headache experts in the country were invited to speak and give case presentations.
First Ever UK Doctors CSF Leak Study DayPosted on 23 September 2019
20th September 2019, The National Hospital of Neurology and Neurosurgery, London This article was kindly submitted by Clare Joy, a Trustee of the CSF Leak Association, who was able to attend the…