News

Pete is a Flight Service Manager for Virgin Atlantic Airways, however has been unable to fulfil this role since the onset of his symptoms. Pete first experienced CSF related problems in 2009 after a…

Deborah has spent most of her life working extensively in retail, from Saturday girl to store display design to flagship store manager. She’s passionate about art, crafts and design. Her great love…

David is a founding member and trustee of the CSF Leak Association, and currently serves as chairman. David is a Chartered Town Planner with over a decade of experience in the development industry.…

Cerian Bladwin, the CSF Leak Association’s treasurer, has been supporting her husband, David, since the onset of his CSF leaks in June 2013. Through being part of David's journey, she has met other…

On Saturday 28th May 2016, some 100 tartan-clad bikers arrived on the banks of Loch Ness as part of a two-day 500-mile ride in support of the CSF Leak Association. Called ‘The Kilt Ride 2016’ the…

The Kilt Ride 2016 is the world’s first ever large-scale awareness and fundraising event for cerebrospinal fluid (CSF) leaks.

We’re delighted to announce that Kate Hubbard and Ray Michael are organising fundraising events for CSF Leaks. Kate and friends are doing a gruelling Tough Mudder to raise funds for the CSF Leak…

On the evening of Tuesday 28th February, I caught the train into London and made my way to the Southbank where we were meeting for a briefing prior to the big event. Scott Bell, from UK Fire Walk and…

We are delighted to announce that today marks the establishment of the UK’s first charity dedicated to cerebrospinal fluid (CSF) leaks. The Office of the Scottish Charity Regulator has approved our…

When Elizabeth “Beth” Johnson stood up from working at her computer Oct. 28, she noticed “a kind of funny feeling” in the back of her neck. By Nov. 2, the sensation had become an excruciating…