News

All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News


Meet the trustees - Pete Marnick

Association News

Pete is a Flight Service Manager for Virgin Atlantic Airways, however has been unable to fulfil this role since the onset of his symptoms. Pete first experienced CSF related problems in 2009 after a…

Meet the trustees - Deborah Ogg

Association News

Deborah has spent most of her life working extensively in retail, from Saturday girl to store display design to flagship store manager. She’s passionate about art, crafts and design. Her great love…

Meet the trustees - David Baldwin

Association News

David is a founding member and trustee of the CSF Leak Association, and currently serves as chairman. David is a Chartered Town Planner with over a decade of experience in the development industry.…

Meet the trustees - Cerian Baldwin

Association News

Cerian Bladwin, the CSF Leak Association’s treasurer, has been supporting her husband, David, since the onset of his CSF leaks in June 2013. Through being part of David's journey, she has met other…

Kilt Ride 2016 Success

Fundraising Events

On Saturday 28th May 2016, some 100 tartan-clad bikers arrived on the banks of Loch Ness as part of a two-day 500-mile ride in support of the CSF Leak Association. Called ‘The Kilt Ride 2016’ the…

The Kilt Ride 2016

Fundraising Events

The Kilt Ride 2016 is the world’s first ever large-scale awareness and fundraising event for cerebrospinal fluid (CSF) leaks.

Fundraising News

Fundraising Events

We’re delighted to announce that Kate Hubbard and Ray Michael are organising fundraising events for CSF Leaks. Kate and friends are doing a gruelling Tough Mudder to raise funds for the CSF Leak…

Interview with a fundraiser - Polly Walker

Fundraising Events

On the evening of Tuesday 28th February, I caught the train into London and made my way to the Southbank where we were meeting for a briefing prior to the big event. Scott Bell, from UK Fire Walk and…

We’re now an official charity!

Association News

We are delighted to announce that today marks the establishment of the UK’s first charity dedicated to cerebrospinal fluid (CSF) leaks. The Office of the Scottish Charity Regulator has approved our…

Patient bounces back to life following CSF repair surgery

Leaks in the News

When Elizabeth “Beth” Johnson stood up from working at her computer Oct. 28, she noticed “a kind of funny feeling” in the back of her neck. By Nov. 2, the sensation had become an excruciating…


Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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