All of the latest news from the CSF Leak Association, as well as coverage of CSF leaks in the media.

All News

A Message from the Chairman

Association News

Hello and welcome to the inaugural edition of ‘Leaker Life’, the e-newsletter published by the CSF Leak Association, a new UK charity working to raise the profile of cerebrospinal fluid (CSF) leaks…

Tough Mudder North West Update

Fundraising Events

On September 11th 2016, seven brave souls will be taking on the unforgiving challenge of the TOUGH MUDDER North West in order to raise much needed funds, awareness and support for the CSF Leak…

Meet the Trustees - Polly Walker

Association News

In September 2016, we welcomed Polly Walker to the CSF Leak Association Board. Polly is now one of the trustees of the charity, taking the total to seven. Her background is in education; originally…

Interview with a fundraiser - Jenny Pople

Fundraising Events

I had my first spinal CSF leak in 2012 and a second in 2015. During my first leak I was diagnosed really quickly but not offered any treatment and struggled to find good quality information about the…

Becky Hill's Blog

Awareness Events

There are handful of bloggers around the globe who write about their experiences of living with a CSF leaks. Becky Hill, a current leaker based in the UK, has been blogging about her life,…

Leaker Profile - Cameron Goodship

Cameron shares his inspiring story about life with a CSF leak. You can read about other patient stories on our patient experience's…

Tough Mudder North West

Fundraising Events

On September 11th 2016, Frances Todd and Kate Hubbard (right and centre respectively in the photograph) will be taking on the unforgiving challenge of TOUGH MUDDER North West in order to raise much…

Hollyoaks' star suffers CSF Leak

Leaks in the News

Duncan James, of UK pop band Blue and now popular TV soap Hollyoaks, talks about his recent struggles with a cerebrospinal fluid leak following surgery. He reveals how this terrifying illness almost…

Meet the trustees - Claire Hubbard

Association News

Claire Hubbard is a trustee and became a Spontaneous Leaker in 2009. She was first diagnosed and treated in June 2014 and has been treated with multiple blood and fibrin glue patches in USA and at…

Meet the trustees - Sarah Mead

Association News

Sarah Mead is one of the trustees of the charity. She is married with 3 children and lives in a market town near Cambridge. Sarah trained as a Botanical Illustrator and worked until illness made…

Get Involved

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out how by following the links and deciding which method fits you best. We appreciate any help you are able to give..

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