Meet the trustees - Deborah Ogg

Deborah has spent most of her life working extensively in retail, from Saturday girl to store display design to flagship store manager.

She’s passionate about art, crafts and design. Her great love of riding motorbikes has been put on hold while she has a CSF leak, however she hopes to get back to that in some form in the future.

She feels privileged to be a trustee and secretary of the CSF Leak Association. Being able to help raise awareness, knowledge and work towards better diagnostics and treatments is a fantastic opportunity. She developed a spontaneous spinal CSF Leak in April 2011 and continues to live with this condition. She also has Ehlers Danlos Syndrome (hypermobility type) which she feels is the most likely cause of her CSF leak.