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Medical News

BASH 8th Biennial National Meeting on Headache

Medical News

17 - 18 January 2019 - By Clare Sargeant It was early in the morning on a cold day back in January that Clare Joy and I set off for Hull to attend the 8th Biennial BASH National Meeting on Headache.…

Meet the Medical Advisory Committee Members - Dr. Anthony Ordman

Medical News

In this edition we get to know Medical Advisory Committee member, Dr. Anthony Ordman a little better, and in particular, what drew him to join the MAC. I was delighted to be asked to become a member…

First Ever Headache Academy

Medical News
Awareness Events

The CSF Leak Association was delighted to be invited to endorse and attend the first Headache Academy, a teaching weekend on headache disorders which was held on the 13th-14th October 2018 at the Royal College of Physicians in London.

RAREfest

Medical News
Awareness Events

It’s 2018 and rare diseases are still not being consistently diagnosed, treated and supported effectively. RAREfest is a first-of-its kind rare disease inspired festival conceived and brought to you…

Second Annual Cedars-Sinai Intracranial Hypotension Symposium

Medical News

The Second Annual Cedars-Sinai Intracranial Hypotension Symposium will be hosted once again by Cedars-Sinai in partnership with Spinal CSF Leak Foundation on October 13, 2018.

CSF Leak Week UK 2018

Medical News
Awareness Events

Our first UK based awareness week ran from the 26th February – 4th March 2018, and what a week it was!

Meet the Medical Advisory Committee Members - Dr James Walken

Medical News
Association News

Dr James Walkden We are delighted to take this opportunity to begin to introduce the members of the Medical Advisory Committee individually, with Dr James Walkden, Neurosurgeon at the Aberdeen Royal…

Rare Disease Day 2018, Scottish Parliamentary Reception

Medical News
Awareness Events

By Deborah Ogg I was very excited to attend the Scottish Parliamentary Reception for Rare Disease Day. The reception was organised by Rare Disease UK / Genetic Alliance UK and the Scottish…

Inaugural CSF Leak Association Medical Advisory Committee Meeting

Medical News
Association News

The first CSF Leak Association Medical Advisory Committee Meeting was held on the 20th January at the National Hospital for Neurology and Neurosurgery in London.

Formation of the Medical Advisory Committee

Medical News
Association News

The 20th January 2018 will mark the inaugural meeting of our Medical Advisory Committee (MAC), where a number of medical professionals with an invested interest in CSF Leaks will come together at a…


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