We’re a registered charity working to raise awareness of cerebrospinal fluid (CSF) leaks, to provide support to sufferers and their families, and to secure diagnostic and treatment advancement.

Announcements

Learn more about upcoming events and read articles to find out more about the CSF Leak Association by clicking on the links below.

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Posted on June 07, 2022

Draft Guidelines for Spontaneous Intracranial Hypotension (SIH)


UPDATE: The draft guidelines consultation has now closed. We'd like to express our sincere thanks and gratitude to all who participated and…

Jul 01
Upcoming Event

Murray & Ross' 150 miles in July Challenge (Cycle/Run)


Murray and Ross's July cycle/run challnege 2022 for CSF Leak Association - The Cerebrospinal Fluid Leak Charity because it raises awareness of their uncle's condition.

An Introduction to Cerebrospinal Fluid (CSF) Leaks

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Understanding the condition

Raising awareness of the condition and educating medical professionals and sufferers is one of our major goals. Watch the video and follow the links below to find out more details about the CSF Leak condition.

More Information

Causes Symptoms


Patient Experiences

Cerebrospinal fluid leaks aren’t just something discussed in a medical textbook, they affect people and their lives. The impact can be huge and, when left unresolved, a CSF leak can be life-changing.

Read all stories


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Become an Association Member

As an organisation, our aim is to provide support to all sufferers of cerebrospinal fluid (CSF) leaks and, in addition, their family, friends and medical advisers. Member benefits include:

  • Access to our members’ mailing list
  • Access to our online membership system
  • Access to our members’ network directory
  • Access to our membership library
  • Right to attend and vote at members’ meetings

Resources & Factsheets

We have prepared information and resources which we hope will help to raise awareness of CSF leaks and the associated medical condition Intracranial Hypotension

Information For

Patients

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Information For

Medical Professionals

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How you can help

You can support the mission of the CSF Leak Association in many different ways. If you want to help you can find out more about how by following the links and deciding which method fits you best. We appreciate any help you are able to give.

Learn About the Association

Volunteer

If volunteering is something you think you are able to commit to, then please follow the link to find out more about how you can help.

Find out about volunteering

Donate

Any donations are appreciated and will help to raise awareness. Please follow the link to find out how you can make a donation.

Give today

Membership

There are different categories of membership so please follow the link to find out which category fits you best.

Become a member

Raise awareness

Help us raise awareness of the condition by keeping up to date about what can be done by signing up for our newsletter below.

Sign up to the newsletter

Tips for Fundraising

If you wish to contribute by fundraising please follow the link below for tips on how you can make a difference.

Read the fundraising tips

Online Shop

Support our mission by getting something for yourself or loved ones from our online shop.

Purchase items to support

CSF Leak Association Fundraising Hiking and Running